Generativity in Data Infrastructures: Exploring Tensions in Linked Health Data in Medical Genetics Initiatives
(joint work with M. Lynne Markus, Bentley University)
Digitization has become nearly synonymous with generativity in the information systems literature and more broadly in organizational research addressing digital infrastructures and platforms. Generativity is associated with growth, and fluid and porous boundaries that engender new unforeseen uses and users. Various material and immaterial properties of digitization have been associated with generativity. Yet, data itself and particularly data use has received limited attention in generativity discussions. The presentation explores generativity from the data perspective. Specific examples relate to linked health data infrastructures that are being built in various medical genetic initiatives that combine genetic data with health, real world behavioral and sensor data. We examine a number of tensions in these emerging data infrastructures including value capture from data vs. technology, short-term vs. long-term goals, local vs. national vs. global, public vs. private holders/guardians, and centralized vs. distributed design. The return from massive public and private investments in these initiatives requires a better understanding of these tensions and how they both increase and limit data generativity.
Please join us on Monday August 13th, at 4:45pm, Swissotel Chicago, Zurich D.